{"id":16430,"date":"2025-04-27T14:40:06","date_gmt":"2025-04-27T14:40:06","guid":{"rendered":"https:\/\/www.rixinclusiveresearch.org\/?p=16430"},"modified":"2025-07-04T12:28:24","modified_gmt":"2025-07-04T12:28:24","slug":"duchenne-uk-new-horizons-conference-2025","status":"publish","type":"post","link":"https:\/\/www.rixinclusiveresearch.org\/uz\/duchenne-uk-new-horizons-conference-2025\/","title":{"rendered":"Duchenne UK New Horizons Conference 2025"},"content":{"rendered":"<p><span class=\"intro-para\">28-mart, juma kuni men Londonning Bloomsberi shahridagi Holiday Inn mehmonxonasida bo\u02bblib o\u02bbtgan Duchenne UK New Horizons milliy konferentsiyasida ishtirok etdim.<\/span><\/p>\n<p>Ushbu konferentsiya Duchenne mushak distrofiyasi (DMD) kasalligi bilan bog&#039;liq bo&#039;lgan yuzlab odamlarni, shu jumladan men kabi DMD bilan og&#039;rigan odamlarni, ko&#039;plab ota-onalar va vasiylar, shifokorlar va sog&#039;liqni saqlash mutaxassislari, farmatsevtika kompaniyalari vakillarini birlashtirdi.<\/p>\n<p>Men Psixo-ijtimoiy ehtiyojlar va ta&#039;lim haqidagi taqdimotda DMD bilan kasallangan boshqa kattalar Benjamin bilan birga qatnashdim. Biz bilan Sharqiy London universiteti dotsenti, RIX jamoasi a&#039;zosi Janet Xoskin va psixiatr Rori Konn ishtirok etishdi. Rori DMD bilan og&#039;rigan odamlarni psixo-ijtimoiy qo&#039;llab-quvvatlash zarurligi haqida gapirdi va Janet o&#039;z tadqiqotlari shuni ko&#039;rsatadiki, maktablar ko&#039;pincha DMD ning jismoniy bo&#039;lmagan tomonlarini, masalan, neyro-divergentsiya va xavotirlik kabi xavf-xatarlarni hisobga olmaydilar.<\/p>\n<figure id=\"attachment_16432\" aria-describedby=\"caption-attachment-16432\" style=\"width: 1200px\" class=\"wp-caption alignnone\"><a href=\"https:\/\/www.rixinclusiveresearch.org\/wp-content\/uploads\/Saul-and-Benjamin-New-Horizons.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-16432\" src=\"https:\/\/www.rixinclusiveresearch.org\/wp-content\/uploads\/Saul-and-Benjamin-New-Horizons.jpg\" alt=\"people presenting on stage\" width=\"1200\" height=\"779\" srcset=\"https:\/\/www.rixinclusiveresearch.org\/wp-content\/uploads\/Saul-and-Benjamin-New-Horizons.jpg 1200w, https:\/\/www.rixinclusiveresearch.org\/wp-content\/uploads\/Saul-and-Benjamin-New-Horizons-1024x665.jpg 1024w, https:\/\/www.rixinclusiveresearch.org\/wp-content\/uploads\/Saul-and-Benjamin-New-Horizons-400x260.jpg 400w\" sizes=\"auto, (max-width: 1200px) 100vw, 1200px\" \/><\/a><figcaption id=\"caption-attachment-16432\" class=\"wp-caption-text\">Rori, Janet, Shoul va Benjamin konferentsiyada ishtirok etishdi<\/figcaption><\/figure>\n<p>Benjamin va men maktab, kollej va universitetdagi vaqtlarimiz haqida gaplashdik. Benjamin A darajalarini bajardi va Nottingem universitetiga bordi va u erda Neyrologiya bo&#039;yicha birinchi darajali imtiyozli diplom bilan taqdirlandi, bu ajoyib. U, shuningdek, kichikligida maktabda o&#039;qishni qo&#039;llab-quvvatlagani va bu uning orqada qolmasligini ta&#039;minlashi haqida gapirdi. DMD bilan og&#039;rigan boshqa odamlar singari, menda ham disleksiya, DEHB va chegaradagi autizm spektri holati bor. Maktabda bu men uchun ko&#039;pincha o&#039;rganish va yangi do&#039;stlar orttirish qiyinligini anglatardi. Yoshligimda maktab menga o&#039;qituvchi yordamchisi bilan qo&#039;shimcha o&#039;qish yordami va matematikadan qo&#039;shimcha yordam berdi.<\/p>\n<p>Men barcha GCSE larni topshirishga muvaffaq bo&#039;ldim va keyin kollejda IT va dasturiy ta&#039;minotni ishlab chiqish bo&#039;yicha BTEC ni topshirdim. Men universitetda O\u2018yinlar dizayni va ishlab chiqish bo\u2018yicha tahsil oldim, chunki men video o\u2018yinlar yasashni va ularni o\u2018ynashni yaxshi ko\u2018raman. Universitet qiziqarli o&#039;tdi va men ko&#039;plab do&#039;stlar orttirdim va o&#039;yinni rivojlantirish haqida ko&#039;p narsalarni o&#039;rgandim. Umuman olganda, universitetdagi eng yaxshi narsa bu do&#039;stlar orttirish va dars oldidan otishma ichish edi!<\/p>\n<p><em>Saul Catlin, DMD advokati va RIX tadqiqotchisi<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Saul Caitlin, DMD advokati va RIX hammuallifi, yillik Duchenne konferentsiyasida nutq so&#039;zlaydi<\/p>","protected":false},"author":8,"featured_media":16437,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-16430","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/posts\/16430","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/comments?post=16430"}],"version-history":[{"count":5,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/posts\/16430\/revisions"}],"predecessor-version":[{"id":16464,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/posts\/16430\/revisions\/16464"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/media\/16437"}],"wp:attachment":[{"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/media?parent=16430"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/categories?post=16430"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.rixinclusiveresearch.org\/uz\/wp-json\/wp\/v2\/tags?post=16430"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}