The Government has set up a £2.5 million fund to provide devices, internet connection and digital support to people with learning disabilities who can’t afford to get online.

Digital Lifeline is funded by the Department for Digital, Culture, Media and Sport and delivered by Good Things Foundation, in partnership with AbilityNet.

Ajay Choksi, Rix Wiki Master and trainer, has been invited to sit on the associated Government Advisory Board as a self-advocate accompanied by Rix support. This is a great opportunity for both Ajay and Rix to be part of this exciting project.

“Covid has shown how access to technology is a vital part of an independent and fulfilling life for everyone in the community.”
Gary Moore, CEO of AbilityNet

Recent research has shown that the wellbeing of people with learning disabilities is twice as likely to have been affected by the impact of coronavirus when compared to non-disabled people.

The principal aim of the Rix Centre’s Stay Connected project with TechForce19 during the pandemic was to show how the Rix Multi Me software can help reduce feelings of loneliness and support the mental health and wellbeing of people with learning disabilities.

One of the barriers that our Stay Connected partner organisations identified during the implementation phase of the project was a lack of digital connectivity amongst supported users. This issue can be divided into the three distinct but related needs: hardware (having a suitable device), support (being able to use the device) and internet access (having broadband or a data contract).

According to the Government website, the Digital Lifeline scheme will pay for 5,000 Android tablets, preloaded with data and free tech support, for those people with learning disabilities who find themselves digitally excluded and socially isolated because of coronavirus. The fund will be delivered through participating organisations rather than via individual applications.

woman with laptop
A digital lifeline

The Government website sets a tight deadline for applications:
“Applications are welcome from organisations operating in England that support people with learning disabilities, including self-advocacy groups, community-based organisations and those that provide support to people where they live. As an emergency response project, applicants should be prepared and able to begin immediate delivery of the Digital Lifeline programme.
The deadline for applications is 12pm on Monday 15 March.”

We’ll keep you updated on Rix team member Ajay’s involvement in the Digital Lifeline programme.

In the meantime, if you think this opportunity is too good to miss for your organisation and the people you support, get your skates on and apply below!

Let us know how you get on and please do contact Rix at rixadmin@uel.ac.uk if you have any difficulty accessing this opportunity for the people you support – we will do what we can to assist!

Find out more and apply here

Digital Lifeline | AbilityNet

 

We are excited to announce that our Rix Wiki parent champion Sam Bergin Goncalves will be speaking at the Health Plus Care Online event taking place on 24-25 February.

Sam will be using this opportunity to talk about the benefits of using Rix Wikis to share information and will be appearing alongside Professor Adam Gordon, President Elect of the British Geriatrics Society.

Last year the Professional Record Standards Body published five new landmark standards to ensure that services can work together better and support more personalised care for individuals. Sam Bergin Goncalves, the Citizen Lead on this PRSB project, will talk about how putting the standards into practice can improve the quality of support for people like her son, Shane, who has complex needs. Meanwhile, Professor Adam Gordon will talk through the standards from a clinical perspective, explaining how they will support health and social care professionals in tailoring care and support for individuals with a focus on their wellbeing.

View full programme and register for event

We caught up with the Inclusion North team to find out how they have been using our Rix EasySurvey software during the past year.

Inclusion North exists to make inclusion a reality for all people with a learning disability or autism and their families. They are a regional organisation working across the North East, Yorkshire and Humber regions.

Inclusion North website

For those who don’t know, Rix EasySurvey is an accessible survey making tool. Perfect in its simplicity, EasySurvey is fun and easy to use. It’s exactly what you would expect from Rix software. There is also a fantastic free version of the software, EasySurvey Lite, which you can access and use today.

Inclusion North used EasySurvey to make sure the views and ideas of the people they support could be captured, documented and organised. Gathering this information as part of their person centred approach helps them make sure that the services they offer are appropriately designed for the people they work with.

The Inclusion North team shared their top 5 highlights of the software

1. Being able to put together an easy read survey with pictures is fantastic
2. The sound quality for each of the written questions is great
3. It’s easy to understand the data once people have completed their survey
4. The training guide that comes with the software is really useful
5. It is like no other survey we’ve found – really accessible

The team have also suggested developing the software to allow survey creators to download a printable version of the online survey. At Rix, this kind of feedback helps us to develop and improve our software and this ethos of co-production underpins the way we work with our partners. The team from Inclusion North are experts and we look to them to help us make our inclusive technologies even better.

Inclusion North’s goal of inclusion for all is a big and important challenge and we believe that our Rix EasySurvey software is helping to make this a reality.

Your council, clinical care group, charity, care organisation, school, or group can benefit in the same way by signing up for Rix EasySurvey. Making this reasonable adjustment will enable people to complete your accessible surveys and let you know what they think.
There are resources and links below to help you get started today. Before you know it, you’ll be sending out your first fully accessible survey to the people you want to hear from and whose views can help shape your service.

“Inclusion means everyone living good lives as valued members of society. We work to change society so that everybody can have a good life.”
Inclusion North

Sign up for free Rix EasySurvey Lite account

Buy full version of Rix EasySurvey

More about Rix EasySurvey

Read case studies

The NHS Digital Social Care Pathfinder programme 2020 has been funding 16 local programmes to implement innovative information technology solutions to improve the sharing of information between health and social care.

One of the areas identified as needing improvement was the About Me section in the Core Information Standard which is used in shared care records and digital care and support plans. The Professional Record Standards Body, PRSB, was commissioned to support this work.

The About Me section is for people to share important information about themselves with others who support or care for them to enable person centred care and support. This may be different from the information that a professional records about a person as it is what the individual wants to share and it will be what is important to them. It is only shared with people who have a legitimate reason for accessing the information.

Andy Minnion, Rix director, met with Sam Goncalves to find out more about her work as Project Citizen Lead with the PRSB.

Tell us about your role as a parent carer representative with the PRSB

The role of Project Citizen Lead in the development of standards has been to represent the interests of the public in the design and development of record standards, an area that is very important to me as a parent carer of a young adult with complex needs. It is important to drive change in record standards by promoting themes that patients really care about. Patient centred outcomes are just as important as outcomes that focus on good care.

Why is it important to have an Integrated Care Standard?

Individuals and their carers should have a voice in their health decisions and autonomy in deciding about their care, treatment and support. People are the experts on themselves and their values and preferences should be respected. Sharing About Me information with both health and care providers will give people that voice. Information you won’t necessarily find in a medical report – information like how an individual communicates, how they make choices and what strategies could make them feel more relaxed, reducing stress and anxiety.
For those who are physically disabled, knowing and understanding not only when they need support but also when they do not, to ensure they are always treated with dignity and respect.

“Many professionals appear to be trying to fit people into systems. About Me is about turning that around so that systems have to fit around the person. The reasonable adjustment is the task of the service to adjust to the person not the other way around.”
Tricia and Tony, parent carers

What is your experience of the importance of About Me information?

I have been sharing About Me information about my son Shane for 8 years using digital technology by inviting all carers and professionals to view Shane’s Rix Wiki. Knowing how Shane communicates, what he likes and dislikes, what’s important to him, when to support him and when to allow him time to be independent is all vital information to provide good care and support.

“The vision from the start was to get proportionate About Me information at the forefront of every health and social care record, even in an emergency”
Keith Strahan, Clinical Lead, Social Care Programme at NHS Digital.

Why is ‘About me’ information so important to capture in our standards?

Having access to About Me information reduces the number of times people have to tell their story. This not only saves time but also a lot of stress and anxiety. Many patients like my son who receive social care have a long-term disability. Their “story” to retell can often be extremely upsetting. In our case my son contacted meningitis 25 hours after he was born and as a result suffered brain damage causing cerebral palsy, blindness and a severe learning disability. I have lost count how many times I’ve had to retell my story – retell the details of the most upsetting, terrifying period of my life. Think about the most upsetting time in your life and imagine how you would feel if you constantly had to relive that day. Reducing the need for this retelling is of great benefit to both patients and family carers.

When we know how best to support a patient in hospital, we not only keep the patient and staff safe, the patient also receives a better quality of service which results in healthier and happier people.

photo of young people
Sam with Shane, Declan with his cousin, Caitlyn

A couple of weeks into lockdown I ended up in A&E with my son. He had a large peanut stuck up his nose and, as someone with a profound learning disability, this quickly became a medical emergency. As Shane is visually impaired, I explained to the ER nurse that he should allow Shane to feel the blood pressure arm cuff before placing it on his arm. This would help him feel more relaxed and more prepared for what was going to happen. Responding positively to his signing when he signed finished and reassuring him that it was almost finished enabled him to tolerate the whole procedure. Discussing with the doctor the need for Shane to be sedated using a mask and not an IV meant the right treatment plan was put in place. If I had not accompanied Shane and this vital information had not been shared the medical team would have tried sedating Shane through an IV which was their initial plan. This would not have been successful and he would have become extremely distressed displaying behaviour which is very difficult for everyone to manage. This would mean more time spent in hospital, as an alternative treatment plan would have become necessary.

This is an example of the type of information in an About Me record which, when shared, can make a huge difference to both patient and staff safety. We can avoid prolonged hospital admission and unnecessary patient distress by small reasonable adjustments offering treatment that is appropriate and safe. And for hospital admissions during the pandemic, this About Me information becomes even more important as people often end up going into hospital without the people that know them best.

Tell us about using the Rix Wiki to capture the voice of parents and carers in your work with PRSB

During our consultation period we had to think outside the box as we were unable to hold face to face focus groups during the pandemic. People had to stay at home and work from home and many of the people we wished to engage with were shielding or self-isolating. Using a Rix Wiki for this engagement seemed the obvious solution to me.

The revised approach involved asking people in care homes, individuals receiving social care at home, informal carers and community-based professionals to record videos or audio clips or provide written evidence responding to questions about what information they would include in an About Me.

Online surveys were one part of the overall consultation approach in the development of the standards, and an accessible version was developed using Rix EasySurvey. This enabled those with additional needs to record their views.

“Health and care professionals need information about what matters most to people so that they can provide care that genuinely meets their personal needs. PRSB sets standards for sharing information and we worked earlier this year with Rix Media and used their EasySurvey tool to learn from people with complex needs what information they think is important to share about themselves to improve care. EasySurvey helped us get excellent feedback that will help improve care.”
Helene Feger, Director of strategy, communications and engagement, PRSB

By listening and engaging with patients and their carers we can develop standards that reflect what’s important to them.

The overall objective of the pathfinder programme was to accelerate improvements in both health and social care. Good care alone is not enough for me. Good care keeps you alive and safe but improved care is where we are listened to, valued and understood, our goals and health ambitions are taken into account and support is offered to help us to achieve these.

PRSB Standards

On 3 December 2020, 250 people from 40 different countries came together on ZOOM for the Global Self-Advocacy Summit organised by Inclusion International

The Summit gave voice to the work of a large and diverse group of people with learning disabilities from all corners of the world including Hong Kong, Trinidad, Malawi, Ecuador, USA, India, Indonesia, Austria, Australia – too many to list all of them here and a genuinely global event.

The delegates had each prepared a poster representing where they were from and a short video presentation about their self-advocacy work in areas like training, advocating for changes in the law and providing information in easy read.

two young men from Hong Kong
Chosen Power, Hong Kong

We also heard from several people from the UK including our very own Wiki Master Ajay Choksi, an inspiration to many and the ideal person to represent the self-advocacy at the heart of everything we do at Rix. Ajay spoke about the work he has been doing to support people who are feeling isolated during the pandemic, including working with Digital Unite to produce a ZOOM online training resource. Watch this space!

Ajay’s Wiki

Alongside Ajay, a truly international band of self-advocacy champions shared their achievements so far and their hopes and dreams for the future. The Summit was full of positive energy and inspiring cameos and if anyone’s feeling a bit deflated, or even defeated by these challenging times, we wholeheartedly recommend that you watch the video of the event put together by Inclusion International.

We respect each other and we don’t care about difference and that’s what the world needs. So let’s just get out there and save the world
Don, Advocacy Communication Project, USA

picture of harbour
LASA, Lebanon

Video of the event

Inclusion International

The Audit log is a new feature that helps you understand how a person is using their Wiki. The log also gives details about when and how a Wiki has been viewed by those who have access.

In order to be GDPR compliant, software must provide an audit of how data is added, processed and deleted. This is now possible using the Rix Wiki Portal administrator dashboard.

In the development of the Audit log, we have been careful to ensure that the software complies with the law and protects an individual’s rights to privacy. This means that whilst a Portal administrator can see a log of the types of changes that have taken place inside a Wiki, the details of these changes are known only to the users who have permission to view that Wiki.

For example, our Wiki Audit log will identify that a video was added to the Wiki by a user on a particular date and time. It will not show the video content within the Audit log.

iPads with users
All changes, updates and views are logged

Portal administrators can use the Audit log to

– identify how active a user is with their Wiki
– identify when and how professionals and family members have viewed a Wiki
– understand the latest changes made to a Wiki
– audit whether the Keeper or Owner made a specific change to a Wiki

The tool allows portal admins to fully discharge their GDPR duties of tracking when and by whom data is collected, accessed, processed and deleted
Craig Wikie, Rix software development

Find out more about the Audit log feature and how to use it here

Wiki Audit log user guide

On Saturday 17 October 2020, the MYS (Me and Your Stories) project held its international webinar with attendees from all over Europe

During the webinar we showcased and demonstrated the use of the MYS toolbox, an online collection of storytelling exercises and multimedia tools.

Attendees were also able to join interactive group activities during the webinar, using some of the apps in the MYS toolbox – Padlet, Kahoot, Miro and Answer Garden.

It was a great pleasure to take part in this workshop

Barbara Lewandowska, Wroclaw, Poland

The webinar was positively received and many of the attendees expressed an interest in receiving updates about the project.

screenshot of MYS toolbox
MYS Toolbox from Me and Your Stories project

The MYS toolbox is being developed as part of the Erasmus+ project, Me and Your Stories – MYS

The project participants are atempo (AT), inclution gUG (DE), Rix Inclusive Research (UK), CKO (SK) and CCD Teacher Training Center (RO)

Watch webinar video

MYS toolbox

 

Close on 100 people attended the ZOOM event on Thursday 24 September to celebrate the launch of the new Surviving Through Story website. The event was hosted by Nicola Grove from the Tizard Centre, University of Kent, and featured several keynote speakers including Baroness Sheila Hollins, founder of Beyond Words, and learning disability champion Pat Charlesworth.

In her opening words, Nicola reflected on the sea of information that we’ve all had to navigate over the past several months, including accessible information, and how the voices of people with learning disabilities have been largely absent.

In her keynote speech, Baroness Sheila Hollins reminded us that the Government has been slow to understand and respond to the needs of people with learning disabilities – routines and friendships had been disrupted and there was no-one talking to them about this. This informed the work of Beyond Words who produced a steady stream of new picture books, all free to download, with the aim of reducing anxiety and keeping people safe.

Stories are one of the best ways to help raise awareness about people’s lives

Baroness Sheila Hollins

Pat Charlesworth told us that the Surviving Through Story project is a way of people being part of something and that stories are a way of talking about what is happening to us.

Jan Walmsley, researcher and historian, reminded us that the voices of people with learning disabilities are not just missing today, they’ve been missing throughout history. Looking back through time, we usually only see them through a medical lens. As a society, we started to listen about 30 years ago with the publicatiion of ‘Secret Lives’ and ‘Know Me as I am’ and the Surviving Through Story website is building on this tradition of hearing the voices of people with learning disabilities.

Dr Simon Jarrett, editor of Community Living, made a powerful analogy with ZOOM, that our job is to unmute people’s microphones so we can hear their voices. You couldn’t hear everyone agree with this because we were all on mute!

We’re all historians because we all tell stories and we all listen to other people’s stories…it’s a really important part of being a human being

Dr Simon Jarrett

Liz Tilley, a researcher at the Open University, walked us through the new website where people can read, listen to and watch stories as well as see these represented through art and the celebration of lives remembered. The Surviving Through Story website was co-produced with lots of different people. The highlight of the event for many of us was the video story shared by Ajay Choksi, Rix team member and an inspiration to so many people.

Ajay, along with Rix co-director Gosia Kwiatkowska, has been fully immersed in stories with MYS (Me and Your Stories), a pan-European project that you can read more about here. MYS will be holding a virtual meeting on Saturday 17 October as part of the #erasmusdays programme and you can find a link to the event below.

Surviving Through Story launch event

Me and Your Stories event

Notwithstanding the global pandemic, it’s been a busy year for Rix and whilst lockdown has had its challenges it has also presented us with opportunities.

Our Stay Connected project, funded by NHSx, is moving into Phase 2; the MYS Me and Your Stories project continues to develop the innovative MYS toolkit alongside our European partners; the purpleSTARS, with Ajay’s support, have linked up with Montreal’s FABULOUS STARS and are currently working on a zoom training resource for Digital Unite. Rix Wikis and our EasySurvey software are an integral part of these projects and activities.

All of this work has taken place outside the office, off campus, in our respective homes, so we’d like to share some personal and professional reflections with you, as well as our hopes for the future.

Andy

Lockdown pulled the rug from under my routines and then grew new ones of its own. I missed cycling to work and chatting to the guys in the coffee stand at the station. Instead, I did early morning walks on the Heath and got to know the trees and bushes. I rode the waves of news anxiously like everyone else and I loved the streets without cars and the skies without planes.

Work has felt both intense and oddly informal as it has all happened in the spare room in the shape of an endless sequence of Zoom sessions and Teams meetings, with my colleagues like animated postage stamps on the screen. I miss Ajay making me a cuppa and us having a natter in the Rix office and I miss sweating out all the day’s tensions on my cycle home from work.

The people we work with need us to come through with new and better ways to help and support them and I’ve been impressed with how far we’ve come in this respect.

I feel optimistic as we emerge from our lockdown cocoons because we have opportunities to grasp. And when we do meet up as a team, we will really cherish the chance to be together again… so there are exciting times ahead to look forward to!

Craig

Working remotely has felt very isolating at times. I miss seeing my team mates in person, making them a coffee, walking together to buy lunch. These moments and interactions are part of the human experience and hard to replicate in a digital world.

We approach familiar activities as a team in different ways, we use video conferencing and collaborative whiteboards to think through ideas and plans. The ability to collaborate rapidly, rather than wait for a team meeting, has really helped build project momentum.

Working within such a short and challenging timeframe with TechForce19 forced us to change and re-evaluate previous thinking and approaches. We used rapid prototyping and lean thinking to get our ideas from a collaborative whiteboard into the clients’ hands in a matter of hours/days.

My hope is that we continue to develop our thinking around how ‘easy tech’ can reduce social exclusion.

The challenge is to help people connect and build relationships and for me this is the key to so many of the issues we face and will face in the future.

Ajay

I couldn’t go to the gym so I looked for new ways to stay strong, fit and healthy. My new routine helped me to stay positive. Once I had everything I needed to work remotely, I was very happy at home, and able to keep an eye on my elderly father. I found new projects to fill up my time and here is my video diary of decorating the spare room.

Every Monday I run a virtual Wiki Master Class on Wiki building. We look after one another, cheer each other up and I always reminded everyone to stay positive. I have built strong bonds with the group and I like that they look up to me as a mentor. During lockdown I felt it was important for me to stay in contact with colleagues and friends via online chats, video calls and WhatsApp.

I would like to go back to normal and work in the Rix office. I want to run workshops and work on my video production, graphic design and leadership skills.

I hope to find my life partner, travel the world and write a world journal.

Kanchan

The pandemic made me realise I had been caught up in the rat race. Suddenly I had all this free time on evenings and weekends. I spent quality time with my family, cooking, playing, dancing and singing badly! I experienced a roller coaster of emotions throughout, I have laughed, cried, shouted and screamed in frustration. Most importantly, I learned what it means to be patient whilst trying to home school my young son. This experience has changed me and my outlook on life forever – life is for living in the present.

I was fortunate to have the opportunity to try my hand at a few different tasks. I wrote an article for our website and co-wrote another. It was good to be out of my comfort zone and develop my skills. I have such a wonderful and supportive team to guide me and they gave me the confidence I needed. The only barrier was me. I just need to believe in myself.

My hope for the future is that the acts of compassion and kindness that I experienced in my local community continue – sharing food and supporting food banks and other charities trying to help those who are struggling, checking in on isolated elderly residents.

I hope people continue to acknowledge the NHS and other key workers who have worked so tirelessly and continue to do so every day.

Gosia

When lockdown was announced at the end of March, I was not ready for it. It caught me in a bad moment. I don’t want to work from home, I want to go to my office and work with people. I live alone and very rarely choose to work from home. Even though no one else was there, I continued going to the office until they locked the building. Now I have to work from home. Oh no!

The first few weeks were really about establishing new routines and finding ways of continuing my work, supporting my colleagues and ensuring that everything ran smoothly. After a few weeks I started to enjoy the new working arrangements and could see the benefits of working remotely.

If lockdown happens again it will not catch me by surprise, I will be ready and prepared. I will embrace it and enjoy the benefits and opportunities that it presents. I will be strong!

Richard

My experience of the pandemic has been shaped by two things. One, that I was in bed with the virus for 10 days in April. Two, that my partner works in Global Health Research so I was also in bed with someone who could see the bigger picture. Not at the same time though…

I love working from home now that I’ve got used to it. I prefer the natural flow of each day unencumbered by the need to get to and from somewhere else. It’s good that we can do so much online these days and it follows that we must always keep in mind the digitally excluded and look for ways of including them, giving them equal access to the digital world.

It’s hard to focus in on a bright future when the world appears to be in such a mess on so many levels. I hope that we all live the best life we can.

I hope that we continue to connect, support and empower people and that the ways in which we do this become ever more refined and effective over time.

Sam

Losing my dear aunt, who had dementia, to Covid-19 and not being able to attend her funeral made the impact of the pandemic so real to me. The importance of personal relationships and the comfort and support we can offer each other at these sad times can never be underestimated.

For the past few years I have worked partly from home so adapting to working solely from home was not difficult. I do however miss the personal contact and social interaction with colleagues and getting dressed up instead of lounging in pyjamas and only changing my top for a Teams meeting.

Everyone matters. I hope society learns the importance of preserving our planet, the psychological benefits of our green spaces and most of all that we protect and value our most vulnerable citizens, enabling them to live full healthy lives.

mother and son on sofa

On Thursday 16 July 2020, the MYS (Me and Your Stories) Project held a zoom event to celebrate Heroes and Role Models and to announce the winners of the MYS Lockdown Stories competition.

It was heartwarming and inspiring to see everyone there together on the screen enjoying a virtual gallery of the competition entries and taking part in the awards ceremony. It soon became clear that there are many different ways of sharing our stories and that we all have something to share.  Messages, journals, pictures, videos – our ‘Me’ can be captured in a multitude of creative ways.

picture of planet earth with love heart
Liza’s inspirational picture

With her opening words, Gosia Kwiatkowska, Rix Co-director, reminded us of the importance of storytelling.  Everyone has their own story to tell. Sharing our stories is important because it can improve our self-esteem. Telling our story can change how other people see us and can help others to recognise that every story matters, every person matters. Storytelling has the power to change society and make the world a better place.

The Me and Your Stories project encourages students to share their personal stories with their friends, families and community members and to be interested in other people’s stories. This approach to getting to know and understand each other promotes the celebration of difference and diversity and is a positive and constructive step towards recognising and countering the more subtle forms of discrimination and prejudice that can influence our social interactions.

Our MYS toolkit provides a platform for these individual and collective stories as well as offering teachers and parents free resources to use in the classroom and at home.

One of the highlights of the 16 July zoom celebration was the moving presentation from Matthew Goodsell. Matthew explained how the world opened up to him on the day he was given his Lightwriter, a communication aid that enabled him to communicate clearly with other people who found him hard to understand and would sometimes use this as an excuse to bully him or to not take him seriously.  Matthew’s story is a powerful reminder of how important it is to support people to have a voice and to learn how to listen rather than just hear.

“Making sure people understand the patterns of my voice hasn’t always been easy. I have therefore had to push back against people’s low expectations of me throughout my life. Now that I live independently in London, having left university with a Masters, I think I have proven those who doubted me wrong.”

Matthew Goodsell

MYS toolkit

The Coronavirus pandemic has had a profound effect on our ability to go about our day to day lives. There have been many challenges and there have also been many positives as we have found new ways of working and connecting with one another.

The purpleSTARS, a group of people from London with and without learning difficulties, aim to make museum experiences more inclusive through the use of sensory art and digital media. They have kept themselves busy during lockdown by collaborating with a group in Montreal, Canada, called FABULOUS STARS. FABULOUS STARS were inspired to form in response to the work of purpleSTARS and include members with and without learning difficulties from the Wagar Adult Education Center. They have recently started to work towards creating more inclusive experiences for museums in Montreal.

Over the last three months purpleSTARS and FABULOUS STARS have collaborated and documented their lives through digital media. The groups have connected with each other, creating artwork, food and music as a way of sharing their experiences of life during lockdown. They have captured these experiences in the form of a time capsule, the Lock Stars Wiki.

collage of activities and people
Images from the Lock Stars Wiki

Each group had 3 sections in the Lock Stars Wiki

  • Objects and activities that were important to them during lockdown
  • Music they were enjoying during lockdown
  • Food they cooked or enjoyed at home during lockdown

The purpleSTARS and FABULOUS STARS have come together virtually, talked to each other, supported each other and made new friends in another country. Together they have produced their unique Wiki, capturing a moment in time for all to see and in a way that includes and celebrates everyone.

Lock Stars Wiki

purpleSTARS website

Kanchan Kerai, The Rix Centre & Kate Allen, purpleSTARS